The Redpath Centre endorses a researcher-practitioner model in which our practice informs our research
and our attention to current research means our practices are evidence-based. We are engaged in numerous research projects
at any time that relate to supporting individuals with Asperger Syndrome and related symptoms, their families and communities.
We have identified five areas that are research priorities for our Centre:
Understanding Service Needs of Adults
It
has been two decades since there has been a provincial survey on adults with Autism Spectrum Disorders in Ontario. Since the
1990s, there have been major changes to the population of adults that are identified with an Autism Spectrum Disorder, but
few changes with respect to funded services. Many adults seen in practice report that their ASD symptoms provide challenges
that are not met by our current service system. A lack of services often leads to unfulfilled potential and increased symptom
expression. One way of supporting requests for increased funding and services is through the collection of
survey data.
Adults Count! is a province-wide survey that will provide important information of the
needs of adults on the Autism Spectrum. This web-based survey will be used to advocate for more services for adults and provide
a better profile of individuals on the Spectrum over the age of 18 years. Adults Count! will be launched
in Fall 2010. If you are interested in receiving more information about the survey, please email adult.survey@redpathcentre.ca. Thanks to Autism Ontario and Kerry's Place Autism Services for their generous financial support of this project.
Developing
Measures for Adults
We are developing our own measure (The Asperger Screening Questionnaire for Adults)
that will assist in the diagnosis of adults with AS. This is a self-report measure and factor analysis is under way. Phase
two of this project will be devoted to developing an informant measure. The measure will also be standardized on a general
population sample. We are also involved in a project with other academics, examining the effectiveness of other diagnostic
measures in the assessment and diagnosis of AS and related issues.
Adapting Evidence-Based Practices
A
major concern in our field is the lack of evidence-based practices that clinicians can use with individuals and their families
affected by AS. We are currently adapting the use of CBT approaches in a group for adults with AS and co-morbid anxiety/depression.
Another project is looking at the adaptation of an evidence-based mood and behaviour regulation intervention to children with
AS and their families.
Building Community Capacity
At any time, we are involved in projects that
are intended to build capacity and expertise in community-based services and supports. We have received funding for a
study on the experiences of children and youth with "mild ASDs" in pediatric Canadian hospitals.
Supporting
Families
The research on the needs and effects on families is sparse and often based on samples from other
countries. Data regarding the mental health of parents will soon be published in a peer-reviewed journal. A second series
of studies examines marital satisfaction and high-conflict divorce and separation in families of individuals on the spectrum.
We are currently reviewing Canadian family court decisions where families of children with ASDs are involved.
For more
information, or to participate in any of these studies, please contact the Director.